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People Who Can Assist in Your ALS Care

Other Challenges

Social workers and home care and hospice nurses help people with ALS, their families, and caregivers with the medical, emotional, and financial challenges of coping with this disease, particularly during the final stages.
Social workers provide support, such as:
  • Assistance in obtaining financial aid
  • Arranging durable power of attorney
  • Preparing a living will
  • Finding support groups for patients and caregivers.
Home care nurses are available to provide treatment of ALS and teach caregivers to:
  • Maintain respirators
  • Give tube feedings
  • Move patients to avoid painful skin problems and contractures.
Home hospice nurses work in consultation with physicians to ensure proper medication, pain control, and other care affecting the quality of life of people who wish to remain at home. The home hospice team can also counsel patients and caregivers about end-of-life issues.
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